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Book Reviews

“The Hard Word Box” by Sarah Hesketh

In 2013, the English poet Sarah Hesketh spent a period of almost five months visiting residents in a residential care home for people living with dementia. She wrote about her experiences, her encounters and the lives of the people she met in this series of moving and evocative poems. The poems are poignant, funny, compassionate and shot through with wonderful insights into how difficult it is to convey the fullness of a person when language and communication begins to fail. Each of the poems is an exercise in bridging the gap between sense and confusion, language and silence, loss and the richness of humanity. The poems included in The Hard Word Box aren’t just clever and inventive. They’re also beautiful pieces of writing which linger long after reading.

The collection begins with a short essay in which Hesketh explains her process, her findings and the ethics she employed in approaching such a complex project. Her warmth and respect for the residents comes across strongly. The poems which resulted from her visits vary in length and form. Some are observational. Some read like prose poem interviews between the poet and the residents. Others contain verbatim phrases lifted from conversations with the residents. Hesketh shapes her own words around these comments so it feels as if the poem is being co-authored and the person living with dementia is being allowed to voice their thoughts instead of just being talked about.

Doreen has a good sense of humour.

Doreen can be a bit rude sometimes (BE GOOD BECAUSE WE
HAVE NO MORE) but staff help her with this.

  • From “Doreen”

Playful wording and humour abounds in poems like “Phyllis’ Instructions for Sex.” Whilst other poems offer a stunning articulation of suffering, grief and loss, rendered in a way which allows the reader to empathise with the residents. “Please don’t ask us to speak/ the hard words all at once.” In other poems Hesketh uses fractured language, line breaks and jarring metaphors to explore the relationship between communication and silence, and the difficulty of voicing people who are losing their own ability to speak.

Everything is so

balled heart. Too much muscle

     in the sound of thinking.

All we want is to be allowed

to be gone.

                                           To fall from this dark like

                brushed white chalk.

  • From “Into the White”

The Hard Work Box is a powerful and incredibly moving testament to a long community arts engagement project. It is a ground-breaking piece of writing when it comes to exploring the relationship between the person living with dementia and the artist attempting to record their experience. There’s a collaborative element present here which is often neglected in poems and stories about dementia. It is clear from reading Hesketh’s work that listening was just as important as speaking when it came to capturing the residents in the entirety of who they are. This emphasis on a holistic present tense understanding of the person living with dementia is eloquently and compassionately expressed in her introduction. 

When I first started working on ‘Where the Heart Is’ I thought my job would be like that of an archaeologist. That I would help people to recover who they had been, and explore new ways to hang on to that. Instead, I realized what was most important, was not that Maureen used to like jazz, or that Bill had once been a butcher, but that Jack tells great jokes, Phyllis likes helping others to the table- that’s who these people are now.

The Hard Word Box was published by Penned in the Margins in 2014

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Book Reviews

“The Latecomer” by Dimitri Verlhurst

Translated from the Dutch by David Colmer

Meet Désiré Cordier, a very unusual kind of hero. Fed up with the drudgery of retired life, hen-pecked by a bossy wife and irritated by his extended family, retired librarian Désiré hatches a cunning plan. He will gradually feign the symptoms of Dementia until he lands himself a place in a retirement home and a much-needed dose of peace and quiet. All goes according to plan. Désiré is able to fake his way through the memory test his doctor sets him and soon finds himself a resident in Winterlight Home for the Elderly.

“On paper it seemed easy enough: I would more or less crumble away like one of those lonely bluffs you see in Westerns. Slowly, but inexorably, with something resembling grandeur, I would blur and gradually disappear in the mist I myself was discharging.”

However, his plan doesn’t live up to expectations. Constantly feigning Dementia isn’t an enjoyable way of living. He’s beset by daily indignities and frustrated at his own limitations. He’s also shocked to discover he’s not the first resident to have come up with a similar exit plan. Plus, the retirement home isn’t as safe as he’d hoped -he’s sharing his living quarters with a war criminal- and Rosa Rozendaal, his childhood crush is too advanced in her own Dementia to return his amorous advances. It isn’t long before Désiré begins to question the wisdom of what he’s done.

Ably translated from the Dutch by David Colmer, Verhulst’s short novel is a darkly comic exploration of life within a retirement home. It’s funny, honest, sometimes brutally so, and full of well-placed observations about the staff, the residents and the visitors. By crafting a protagonist who’s feigning Dementia Verhulst offers the readers a unique insight into how a person with Dementia is treated and perceived by the people around him. In the following section he describes his daughter’s final visit to Winterlight.

“She could no longer bear to visit someone who didn’t recognise her. The only man she was willing to recognise as her father had dissolved in the mists of his own memory. This was going to be her last trip to this den of misery, her final symbolic visit, to round it all off.”

In normal circumstances a person living with advanced Dementia might be incapable of articulating the experience with the insight and eloquence we get from Désiré. The first person narrative is incredibly affecting. By the time we get to the end of the novel and, like Désiré, realise his family and the people who care for him can no longer see him for the person he is, we understand his frustration and empathise with his lack of autonomy. The Latecomer is a clever novel which uses a bold plot device to place the reader firmly in the shoes of a person living with Dementia. As such, I think it’s a really useful read.

The Latecomer was published by Portobello Books in 2015 

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Book Reviews

“Unbecoming” by Jenny Downham

Jenny Downham’s Young Adult novel about three generations of women has received rave reviews and I can absolutely see why. Unbecoming is a gripping read from the very first sentence.

“It was like an alien had landed. Really, it was that weird.”

Seventeen year old Katie’s estranged grandma comes crashing into her life in dramatic fashion. Mary has been left alone and in need of care after her partner dies suddenly. Katie knows nothing about the woman who abandoned her mother as a baby and can’t understand why her mum seems so reluctant to welcome this intriguing, imaginative older lady into their home when she’s so obviously in need of help. Katie’s mum has her own reasons to distrust Mary, besides her family is already quite complicated: Katie’s father has moved in with his girlfriend, whilst her younger brother Chris has complex, special needs. Katie herself is having a turbulent summer. Her relationship with her mother comes under strain as she begins to embrace her identity as a lesbian and experiences her first romance.

Mary brings fun, excitement and stories about the past into Katie’s life. She brightens up Katie’s dreary family life as together they work on piecing together the older woman’s memories. But Mary isn’t always easy to live with. Her Dementia means she requires constant care. Sometimes she remembers the past in short, lucid bursts. Sometimes she doesn’t know where she is or how to manage the simplest tasks. 

“Every morning I think I can do things, and by the afternoon it turns out I can’t.”

Mary’s Dementia is at the stage where she understands that something’s gone wrong but doesn’t know how to fix it. She’s prone to wander away from home and sometimes has outbursts. She’s desperate to be reconciled with her daughter and her grandchildren but her scattergun attempts at explaining the past and her own mistakes often lead to more upset. Unbecoming is a novel which questions the very idea of truth. If Mary remembers things one way and her daughter remembers the same incidents differently, who’s to say which version is right and whether the confusion associated with Dementia renders the person remembering less reliable or more inclined to speak the truth without considering the consequence?

“Mary had her version of the time she came to stay and Mum had hers…All the threads bind and twist together. And every time you look it’s different, because stories change in the telling.”

This is an incredibly readable novel. I flew through its almost 450 pages. It explores a whole range of themes -intergenerational relationships, LGBTQ, feminist and mental health issues, alongside Dementia- through the central narrative arc of unpicking the complexities of Mary’s life. The third person narration allows Downham to give us an overview of every character’s perspective and also to dip frequently into the past. The writing is moving and eloquent and the ending, resolved enough to feel satisfactory, yet far from cheesy or forced. There are so many things I enjoyed about this novel but what I loved most is the honest, funny and occasionally irreverent relationship between Katie and her grandma. If anything, Unbecoming is a romance. It’s the story of two women separated by a family rift, finding each other in the nick of time and very quickly falling in love.

Unbecoming was published by David Fickling Books in 2015 

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Book Reviews

“An Absent Mind” by Eric Rill

An Absent Mind is a slim novel set in contemporary Canada. It explores the impact of a Dementia diagnosis on a close family unit. The novel opens with the patriarch, Saul beginning to acknowledge his own mental confusion. It moves through his Alzheimer’s diagnosis, the advent of the illness and subsequent decline, his move to a care facility and eventually, both his own death and that of his wife, Monique whom he actually outlives. The story is told from the perspective of five different characters, all of whom speak directly to the reader in first person monologues. We meet Saul himself, a proud and occasionally difficult Jewish man, used to getting his own way, and his longsuffering wife Monique who isn’t even certain she’s made the right decision in staying married for so long to such an overbearing man.

“Given everything, would I do it all over again? Maybe. Maybe not. But I made my choice years ago, and I am almost sixty-six and a grandmother.”

The other monologues are delivered by Saul’s son Joey, with whom he has a troubled relationship, his devoted daughter Florence and the Alzheimer’s specialist who oversees Saul’s treatment and care. The first person sections narrated by Saul himself give an excellent insight into the progress of his illness and how frustrated he is with his situation. It’s not easy for a man as powerful and proud as Saul to watch his autonomy gradually disappear. His accounts of events, lucid at first, become increasingly rambling and confusing as the novel proceeds. Saul’s chapters become shorter as his grasp on language erodes, until the final few chapters consist of nothing but strange composite words, (“Just…hEr as Pretti…Choo fLeur,”) which can be interpreted as meaningful within the context of his story, but are nonsensical to the uninformed. However, what makes An Absent Mind a truly unique reading experience in regards to Dementia, is the way it depicts the collateral damage inflicted upon those close to Saul.

Monique struggles to serve a now vulnerable man who has often made himself deliberately hard to like. Saul isn’t particularly affectionate or grateful. He has always been a demanding man. Now, faced with becoming her husband’s carer, Monique wears herself down physically and mentally trying to look after someone who never went out of his way to look after her. It’s a familiar and very believable snapshot of what many families and partners face when a difficult person develops Dementia. Rill is brave and honest to state so bluntly that an obnoxious person who is living with Dementia will most likely be as unlikable as they were before developing the illness. Joey also struggles with this. His father never tells him he loves him and is constantly putting his son down. Joey finds it hard to love and feel loved by his father. It’s only after Saul loses his ability to communicate that Joey finds a note scribbled in his father’s handwriting, 

“Dear Joey, I never told you while I was alive how much I loved you and how proud I am…”

Rather than bringing some sense of closure, this admission leads Joey to wonder why his father never once, in forty years, uttered these words himself. An Absent Mind is a novel about families and the complex and subtle ways in which people can both love and utterly devastate each other. It’s a novel about missed opportunities and important truths which have gone unsaid, dependency, disappointment and failed expectations. All these issues are present in most families. However, Rill in his novel, exemplifies the way Dementia will exasperate existing problems and expose a family’s fault lines. He paints a bleak but unflinchingly honest portrait of a real family trying to muddle through.

An Absent Mind was published by Lake Union in 2015