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Book Reviews

“Aliceheimer’s; Alzheimer’s Through the Looking Glass” by Dana Walrath

Anthropologist, artist and writer Dana Walrath became a live-in carer for her mother Alice after her Alzheimer’s diagnosis became too much for her to manage alone. Moving her mother from her apartment in New York to the family home in rural Vermont, Walrath used the months they spent together to both record her mother’s dementia journey and forge connections which weren’t previously there. From the start, Walrath is honest about the fact that she is not particularly close to her mother and sees this period of dependency as an opportunity to bond before it is too late. I appreciated the honesty Walrath brought to the stories she tells about her mother and particularly their interactions and conversations. I also loved the humour in this book. It’s quite a gentle, upbeat account of dementia. Alice is placid and compliant throughout her illness. Walrath goes to great pains to show how her mother retained her humanity throughout her journey with dementia. I also really appreciated the way snippets of Alice’s history and the Armenian cultural tradition she belonged to is deftly woven into the narrative.

Aliceheimer’s is an unusual format. Each page contains both a small piece of observational writing and a beautiful artwork which illustrates the sentiment. The art is a mixture of collage and pencil drawing. Each scene depicting Alice is fashioned out of the cut-up pages of a copy of Lewis Carroll’s Alice’s Adventures in Wonderland. Thematically the Carroll text works marvellously as it allows Walrath to explore both the confusing and disorientating elements of her mother’s illness and the fantastical, imaginative scenarios which her dementia frequently pitches her into. I loved the use of collaged texts. It seemed the perfect medium for depicting Alice who, as a lifelong reader, was still enjoying the physical pleasure of holding a book and the comfort of being read to, long after her dementia had significantly impacted her ability to function normally in other areas of her life.

Aliceheimer’s is part of a fascinating series of publications which explore various medical issues through a combination of illustration and writing. The series is called Graphic Medicine and if the other publications are anywhere near as powerful as Aliceheimer’s I’d thoroughly recommend checking them out.

Aliceheimer’s was published by Penn State Press in 2016 

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Book Reviews

“Take Care, Son – The Story of My Dad and His Dementia” by Tony Husband

Cartoonist Tony Husband turns his attention to a subject very close to home in this slight, but charming book which chronicles the final years of his father, Ron. We follow Ron’s journey from a Dementia diagnosis right through to his death. Told from both the perspective of Tony and his father, the story reveals the close relationship between the two and the way this relationship is significantly impacted as Ron’s Dementia takes over his life. At first Ron is able to continue living with a degree of independence. The opening sections of the book allow the reader to find out a little more about his lifestyle, family and history. He seems like a larger than life sort of man. As the story progresses Ron becomes more and more confused about his own present condition and eventually moves from the family home into a residential care facility. 

The small snippets of first person narrative and the illustrations which accompany each page give the reader a real insight into the practicalities of Ron’s decline. He laments the loss of his independence when his car is taken away and is heartbroken to discover his dog, Lossie won’t be able to stay with him in the nursing home. However, Husband is quick to point out that the move into residential care hasn’t been an entirely negative experience for his father. Ron enjoys the company of his fellow residents, the entertainment that’s laid on for them and even manages to start a new relationship with a fellow resident. He’s also delighted to discover that Lossie is welcome to come and visit. The dog proves incredibly popular with his new friends. 

Take Care, Son doesn’t go into an awful lot of depth when it comes to exploring the Dementia experience. But what Husband records is very familiar and resonates particularly strongly because each little thought and musing is accompanied by a gorgeous illustration which adds a lot to the telling of a familiar story. I also felt the sections offering the reader a glimpse into Ron’s personal thought life were really clear, insightful and loaded with meaning.

“My memories were confused, jumbled… nothing made sense, the world I knew was disappearing, it didn’t make sense and I presume I didn’t either.”

However, my favourite thing about this short book was the tone in which Husband tells his father’s story. It reads like a warm and deeply respectful conversation between a father and son who really love and care for each other. There’s so much respect and dignity implied within this story that even, in the final few pages when Ron talks honestly about facing death and Tony confronts the loss of his father, the narrative felt sad, but not unbearably so. This is a testament to a life both well lived and concluded with dignity. The whole book is shot through with little nuggets of hope and joy. 

Take Care, Son was published by Robinson in 2014 

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Book Reviews

“Wrinkles” by Paco Roca

There are so many ways to tell a story and just as many avenues for engaging a reader. An issue as diverse, wide-ranging and various as dementia will require the whole gamut of an artist’s creative ability as they seek to find effective means of telling a story that isn’t their own. Spanish author, Paco Roca was one of the first to record the dementia experience in a graphic novel. Originally published back in 2007, Wrinkles was later translated into English and republished. Wrinkles follows Ernest, an older man, living with Alzheimer’s disease as he is admitted to a residential care facility and at first struggles to settle into his new home.

We see the residential care facility and the residents themselves through Ernest’s eyes as he’s given a tour of the building and begins to join in with daily activities. The visual aspect of the book allows Roca to be playful with how he interprets Ernest’s gaze. Some images give us a realistic idea of what Ernest is seeing, others allow us an insight into the mental associations and memories his brain is dredging up as he tries to process his new surroundings and friends. Roca’s images also add a layer of humour to the text. One page features eleven almost identical illustrations of older people dozing beneath a clock as time progresses from morning to night. The final cell on the page depicts Ernest being asked if he’s had a good day. The visual is kind of like an illustrated joke and also effectively conveys the monotony of nursing home life much better than any phrase or sentiment could.

Roca also leaves space between his illustrations in order to convey the idea of memory and language loss and also the notion of endless, unstructured time. Not everything is said or stated because, with dementia, not everything can be quantified or expressed in words. Towards the end of the book Ernest’s Alzheimer’s develops and more and more cells are left without speech bubbles. We see Ernest still present even as his ability to communicate gradually begins to disappear. On the final pages of the book Ernest’s features are entirely removed from his face and we’re left contemplating the troubling image of a man whose identity has been removed by the illness he’s living with. Though Roca deliberately includes a final page of images -Ernest present in past memories- I’m not sure I agree with the way he’s depicting a person living with dementia in the final stages. The message he’s conveying seems to be Ernest is no longer Ernest; his only meaning is to be found in his past.

The author spent a great deal of time visiting retirement homes, observing and talking with residents as he researched this book. The results are stunning and very effective. There are moments when it’s impossible to convey with words, exactly what’s going on in the mind of someone living with dementia. In Wrinkles, Paco Roca has shown how visual images can often speak volumes when words begin to fail.

Wrinkles was published by Knockabout Limited in January 2015