A Critical Examination of the Key Legal Issues Raised by the Case of Henrietta Lacks and Johns Hopkins Hospital
[1] Bell Hooks, Resurrecting Henrietta Lacks (Routledge 2012) 89.
[2] T.W. Price, ‘Legal Rights and Duties in Regard to Dead Bodies’ (1951) 68 SALJ 403-420.
[3] Laura Beskow, ‘Lessons from HeLa Cells: The Ethics and Policy of Biospecimens’ (2016) AGR 395, 396.
[4] John Locke, Two Treatises on Government (First published 1690, CUP 1988).
[5] R v Bentham [2005] UKHL 18.
[6] Immanuel Kant, Lectures on Ethics (translated by Peter Heath, CUP 1997).
[7] National Organ Transplantation Act of 1984 §301(America).
[8] Scott Douglas, ‘The Argument for Property Rights in Body Parts’ (2014)56 JME 23, 25.
[9] (1908) HCA 45.
[10] Price (n 2) 415.
[11] (1990) 51 Cal. 3d 120.
[12] ibid.
[13] Deleso Alford, ‘Unjust Enrichment in the Human Body’ (2012) Annals of Health Law 223, 229.
[14] Graeme Laurie, Genetic Privacy: A Challenge to Medico-Legal Norms (CUP 2002) 86.
[15] Rebekah Skloot, The Immortal Life of Henrietta Lacks (Crown Publishing 2010) 45.
[16] Genetic Information Non-discrimination Act of 2008, §201.
[17] Imogen Goold and others, Persons, Parts and Property: How should we regulate human tissue in the 21st century? (Bloomsbury Publishing 2014) 574.
[18] Case C‑34/10 Oliver Brüstle v Greenpeace eV [2011] ECR-I 669.
[19] [2009] EWCA Civ 37.
[20] Mark Pawlowski, Property in Body Parts and Products of the Human Body (2009) 30 LLR 35, 41.
[21] By analogy to Evans v Amicus Healthcare Ltd [2004] EWCA Civ 727.
[22] Re Cresswell [2018] QSC 142.
[23] Pawlowski (n 20) 46.
[24] A. M. Honoré, The Nature of Property and the Value of Justice (OUP 1961) 371.
[25] Department of Health and Social Care, ‘Over half a million people taking part in pioneering Covid-19 research’ (Press Release) (5 December 2020).
[26] (2006) 8 NY 43.
[27] Shawn Harmon and Graeme T. Laurie, ‘Yearworth v North Bristol NHS Trust: Property, Principles and Paradigms’(2010) 69 CLJ 476, 484.
[28] Global Biobanking Market (Grand View Research 2021).
[29] Carlo Petrini, ‘Legal Considerations regarding the Commercial Use of Human Biological Materials’ (2012) JBM 87, 92.
[30] Skloot (n 15) 56.
[31] Hooks (n 1) 63.
[32] Cameron Stewart et al, Public Umbilical Cord Banking and Charitable Trusts (Hart Publishing 2014) 1.
[33] Ibid 15.
[34] Hooks (n 1) 95.
[35] Simon Douglas, Property Rights in Human Biomaterials (Bloomsbury 2014) 156.
[36] Royal Liverpool Children’s Inquiry (2001) [2.1].
[37] Ibid [6.2].
[38] L.H. v Latvia App No.52019/07 (ECtHR, 29 April 2014).
[39] Nils Hoppe, ‘Bioequity – Property and the Human Body’ (2010) 6 IJLC 397-399.
[40] Graham Virgo, Principles of Equity & Trusts (3rd edn, OUP 2018) 45.
[41] Skloot (n 15) 78.
[42] Rebecca Timmins, ‘Radical Actions to Address UK Organ Shortage’ (2015) 26 Nurs Ethics 1936-1945.
[43] M.D Bell, Surrendering a Fundamental Principle for Transplantation Needs? (Hart Publishing 2006) 57.
[44] Alford (n 13) 232.
[45] Mohammed Razai, ‘Covid-19 Vaccine Hesitancy among Ethnic MinorityGroups’ (2021) 372 British Medical Journal 513-529.
[46] Dianne Nicol, ‘Key Issues in the Commercialisation of Biobanks’(2014) 4 Journal of Law and Biosciences 94-136.
[47] Douglas (n 8) 26.
[48] Chester v Afshar [2005] UKHL 41[16].
[49] L.L Wall, ‘The Medical Ethics of Dr J. Marion Sims’ (2006) 32(6) Journal of Medical Ethics 346, 347.
[50] Schloendorff v Society of New York Hospital (1914) 211 NY 125.
[51] Hooks (n 1) 125.
[52] Skloot (n 15) 154.
[53] The Common Rule 2018, §46.101 (TCR).
[54] James Flory and Ezekiel Emanuel, Interventions to Improve Research Participants’ Understanding of Informed Consent (2004) 3 JAMA 1593-601.
[55] Justine Pila, Property in human genetic material: An old legal question for a new technological age (OUP 2019) 33.
[56] HTA s 13 and sch 1.
[57] HTA ss 3(5)-5(1).
[58] HTA, s 53.
[59] Barbo Björkman and Sven Hansson, ‘Bodily Rights and Property’(2006) 32 JME 209, 211.
[60] Beskow (n 3) 400. [1] Mount Isa Mines Ltd v Pusey [1970] HCA 60 [43].