Ella and John have been together for more than sixty years. Now in their eighties Ella has developed terminal cancer whilst John is living with dementia. Aware that they don’t have all that much time left together they decide to leave their home in the American Midwest and take one last long road trip across America to the California coast. They don’t inform their grown up children of their plan. They sneak away in their 1978 Leisure Seeker RV, (a campervan for those not familiar with the American terminology) and follow a route they’d followed years ago, when their children were much younger.
John drives, though he’s increasingly confused and occasionally wanders off, sometimes even threatening Ella with violence. Ella organises everything, though she’s often in agony with her illness and becoming progressively more tired as the road trip drags on for days and days. Back at home, their children are frantic, imagining every variation on the worst case scenario. Little do they know. The couple are held up at knife point, suffer a bad fall and, on several occasions, John gets lost leaving Ella panicking and unsure what to do. When Ella phones home to check in with the children, she doesn’t tell them about any of this.
The Leisure Seeker is a strange little novel. It’s very readable, but the tone is quite odd. It’s hard to tell whether the reader’s meant to see this last adventure as a joyous celebration of a life well-lived, or an example of selfishness on Ella’s part. Though she isn’t technically behind the wheel, this is very much her road trip. John does as he’s told throughout the novel. For me this raised real questions about autonomy and freedom. It’s impossible to know whether a man with a cognitive impairment would willingly choose to drive across half of America in a campervan if he understood how dangerous it was. There’s also a strange change of tone at the novel’s close. For two thirds of the book it feels a little like a buddy movie: upbeat, funny, slightly sentimental, and then towards the novel’s end things take a dark turn. I don’t want to give away any plot spoilers but the final scene kind of calls into question the book’s basic premise, that it is possible to live well and fully with dementia.
Saying all this, for a piece of commercial fiction, the dementia narrative is reasonably accurate and seems to be well-researched. The novel is narrated throughout by Ella so it’s her understanding of her husband’s condition and experience the reader is being presented with. I think this is important to note. From the perspective of dementia, the main questions which The Leisure Seeker left me with were all around autonomy and control. Is it ok that Ella decides everything for John, even if she is married to him?
The Leisure Seeker was published by Harper Collins in 2009