Let’s make Northern Ireland Dementia Friendly TOGETHER.

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By Stephanie Craig

Registered Nurse and PhD student working with a team of researchers at QUB to learn the experiences of people living with dementia in a Dementia Friendly Community.

We all must work together to support people with dementia to make Northern Ireland a Dementia Friendly Community. A place where people with dementia can feel safe and supported.

As a second-year nursing student at Queen’s University Belfast I found my niche in dementia research through an Alzheimer’s Society student scholarship. This gave me an inside into research, I was hooked from the start. This naturally led me into wanting a career in research where I could help more people, this led me nicely into my PhD studies at QUB.

Stephanie Craig

Every three seconds, someone in the world develops dementia and over 55 million people worldwide are living with dementia. Dementia is an umbrella term that encompasses a wide spectrum of progressive neurological illnesses, with over 200 subcategories. This disorder can affect people’s capacity to retain and absorb information, which can disrupt numerous daily activities of living such as dressing, cooking, driving, shopping, and telling the time. This indicates to us that a person with dementia may require more assistance in daily tasks from family, friends, children, or members of the community.

Through my PhD study I am going to be looking at dementia friendly community’s or DFCs and the experiences people with dementia have in these settings. A DFC is a place where people with dementia are recognised, valued, and supported. These places are key in helping people with dementia to live well and stay active members of their communities. Dementia friendliness is a worldwide initiative aimed at supporting people to live well, it is an ethos to assist people with dementia in achieving their maximum possible quality of life, remaining empowered, understanding their rights, and realising their full potential.

This 3-year study which began in October 2021  will see us working with people living with dementia from various charity groups in Northern Ireland such as Dementia NI and The Alzheimer’s Society. Our plan is to identify the impact DFCs have on the day- to- day lives of people living with dementia, uncover characteristics of interventions that may support people living with dementia and explore the possible facilitators and barriers to DFCs’ long-term sustainability.

We want to create awareness and help people realise their role within the community to help support people with dementia.  This starts with reducing the stigma and creating awareness within the public. I was part of a team of researchers aimed at improving dementia care. We developed a Dementia Awareness Game for adults and a Dementia Kids Awareness Game as we believe this encourages adults and children to view dementia in a more positive way, with the hope of assisting people in living well with dementia in the community.

We think by creating awareness of Dementia within the public we can actively help contribute to making Northern Ireland a Dementia Friendly Community for those living with Dementia. Let’s create awareness together- play the games and tell us what you think!

If you would like further infomation pleaseemail Stephanie at: scraig22@qub.ac.uk

Guinness, the Mourne mountains and COVID-19 recovery

In January 2021, Lecturer in Education, Conor Hamiltons’ dad contracted Covid. In this blog post, Conor reflects on the impact of not being connected to him during his illness and on using his Dads connection with the Mournes (and Guinness) to  aid his recovery.

By now just about everyone on the planet is aware of Covid-19. Very few have been untouched by its grasp. Since March 2020 we have all had to change the way we live our lives, be it work, school, shopping, exercise, face to face socialising or visiting family. We have missed parties, pubs, restaurants, holidays and foreign travel. Parents became teachers. Nurses and doctors became unlikely superheroes. As nurses and nursing students some of us were redeployed from our normal day to day jobs to frontline nursing and caring for the sickest of those affected. Personally, I was redeployed from running endoscopy lists in a Day Procedure Unit, to night shifts in Covid Emergency Theatre and having to run from Theatre to the Respiratory Ward or E.D. to intubate the sickest patients and bring them to ICU via the CT scanner. I would be lying if I said I wasn’t affected. We all were whether we care to admit it or not. I know some of those patients sadly didn’t make it. I took my work home with me every morning and I thought about little else until I went back in again that night.

My family remained untouched directly by Covid until January 2021. My parents are both in their seventies. My mother has multiple comorbidities but my father is an ex-marathon runner, and indeed clocked 2 hours 38 minutes for the distance in the mid-eighties. He still walks ten miles a day, and loves hiking in the Mournes. For almost a year they isolated and did everything by the book. My family and my brother’s family visited the back yard and spoke to them through the glass window of the porch. They exercised once daily in Loughgall Park or Gosford Forest Park and stayed within a short radius of home. Shopping was all done online. Yet somewhere over the Christmas period of 2020 Covid caught up with them. Mum had mild flu-like symptoms. Dad initially had the same, but on 7th January his chest became tight and the GP was called. He was ill, but not ill enough for hospital. We were told to monitor him overnight and ring 999 if he deteriorated. Being a typical man, he went off to bed assuring us he would call if he got any worse. At 8am the next morning, my mother found him almost blue, struggling to breathe with oxygen saturation levels below 80%. He didn’t want to go to hospital so he decided to tough it out overnight and hope it would clear up. He was blue-lighted to Craigavon Hospital and the paramedic said had he waited another hour he might not have made it.

So began a month of no contact with dad other than text messaging and passing messages via nursing staff. Dad doesn’t do technology so Facetime, Whatsapp and all those other video messaging services were out the window. It was this very week that I started as a Lecturer in Nursing at Queen’s and I also tested positive for Covid four days after my first vaccination. So, mum was on her own, dad was in hospital and we were all isolating. It was a pretty busy and stressful week. Having been called out to 2 North Respiratory a number of times to help intubate patients while working in Covid Emergency Theatre, I could picture the scene and appreciate what was going on around him.

Dad continued to deteriorate over the next two weeks to the point where he was put on CPAP and told the next step was ICU and ventilation. He found the CPAP intolerable and not only was he physically deteriorating, but mentally he had reached rock bottom. His friend from school, over 60 years ago, had passed away suddenly overnight as a result of Covid in the bed next to him. Dad then developed pulmonary emboli (clots on his lungs). At his lowest ebb, he rang my mum one morning and said he didn’t think he would make it out of hospital, and gave her his bank account details – that’s how we knew he was really sick!

Not knowing how to lift his spirits, myself and my brother David decided to set him a goal. We promised him we’d have a pint of Guinness on top of Doan (one of the smallest peaks in the Mournes) when he recovered. Every time we spoke to him on the phone between then and his discharge weeks later, we reminded him of the goal. For six weeks after discharge either myself or David would call for dad, no matter what the weather, and take him for a walk at 6pm. He started with 400 meters on 8 litres of oxygen pushing a rollator. Again, being a proud man, known around Armagh and beyond for his marathon exploits in the eighties, he would not go out in daylight with the rollator – this was all done under cover of darkness, wearing a big hat and a buff! Over the six weeks we weaned him off the oxygen and increased the distance gradually. Eventually he was walking six miles non-stop with no oxygen. On 1st of April he rang and said he was ready for Doan on the 3rd – I thought it was an April Fool prank, but no, he was ready. His two youngest grandchildren were there to set an easy pace, and in just over 2 hours we had walked the four miles to Doan and made it to the summit. I had three cans of Guinness with me and three glasses to fulfil the promise. That’s him below with the pint…. on Doan. It was a perfect day. It wasn’t a bad pint either. Just before we took this photo we met two of the anaesthetists from Craigavon who were delighted to see him up there. I think they got a bit of a lift from seeing the benefits of their work.

I posted this photo on the Mourne Mountains Hiking Facebook page and it was picked up by a member who is a journalist for the Irish News. They ran a story about dad’s pint of Guinness on Doan and stated that the photo was “the” photo of the pandemic. The Newsletter then picked it up. BBC Radio Ulster rang and did an interview with us on their morning slot. It went to my dad’s head a bit and he started practicing his signature for autographs. We were told last week that the story had made it to newspapers in India, via Canada. Good news seems to travel fast. It seems everyone wants to grab a positive story from the pandemic.

I’m extremely proud of my dad. He is back to walking eight to ten miles a day with his wee rucksack on his back. He takes a stick now, just for a bit of peace of mind. I’m not sure if he takes any Guinness though. If nothing else this wee tale shows the benefits of goal setting in recovery. I’m not sure what would have happened to dad if we hadn’t set him a goal. I’m not sure if it was the goal that helped him recover, or the fact that he realised he had given mum access to his bank account. I like to think it was the goal. He has since changed his bank account password. Set yourself goals in life – believe and you can achieve. Never give out your bank account details. Stay safe.

Steps in the right direction

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In this post Alison Smart & Deirdre O’Neill reflect on embedding self care into the nursing curriculum and introduce the all school walking challenge.

It isn’t too long ago as a deputy charge nurse that I remember struggling to sleep knowing that our staffing levels the next day were not met and wondering how that ICU patient was doing after their surgery. We as a profession of Nurses & Midwives can often deal with very difficult situations and forget about ourselves amongst the maelstrom. This issue has resurfaced in a profound way over the last 12 months of the pandemic with working from home making it very difficult to switch off – I’m sure a lot of you can resonate with this. 

In addition to our career pressures, you are the go-to person for friends and families. Therefore, it is imperative that we, staff, students and the profession as a whole start to look after ourselves and carve out time on a daily basis to fill that cup so we can pour from it in the future. This couldn’t be more true in Northern Ireland – we have a workforce crisis within nursing, so we need to do all we can to manage our well-being and in turn increase recruitment and retention. 

With the introduction of the new curricula, I thought this was the perfect opportunity to embed and promote “Self-Care for Health Care” within the School of Nursing. Due to the new NMC proficiency of ensuring you are in good health this seemed like an ideal opportunity to put this into practice in Year 1 Professionalism in Nursing. 

Each week the students discovered a new activity to undertake, placed visibly within the module material for the week (see Box 1). Students were then asked to reflect and identify how they felt before the activity and how they felt after. 

The feedback received from staff & students was overwhelmingly positive with one of the standout highlights being the step challenge. 

“It is easy, effective and we can all do it” 

“Loved it, got me out and about again” 

“I felt so good after my morning walks”. 

We virtually climbed Mont Blanc and Jo Mc Mullan stormed in front when we headed to the Mediterranean and raced up Corsica (220,000 steps in January). We used a clever and easy app (SQUADS) that allows a forum to message, input steps, share motivation and a healthy dose of competition. 

After speaking with colleagues & sharing the app. Deirdre O’Neill tried it out with Year 2. Let’s hear how they got on: 

After hearing the success of the walking challenge in year one I could not wait to pitch the idea so the students on their return to phase five. With the help of Chloe Gardiner (year two student nurse) a challenge was set up each week for all of us to complete. We divided into three teams and competed against each other encouraging each other to win the weekly challenge.  Initially the challenge was only too last six weeks but because we all see the benefit of not only daily exercise, but we were also able to connect with each other in this virtual platform.  Students were encouraged to share photos of their walking sceneries, so we had pictures of forests, beaches and country lanes.  We saw snow falls and the beginning of the touches of spring.  Each week at the start or end of class we would share our walking stories and because of the laughter and connection it has brought us we will continue the challenge when the students begin their next placement.  

Due to popular demand and with momentum on our side we are holding a walking challenge for staff and students alike as part of QUBbeWell week. The challenge will consist of a Race up Corsica Canyon (69,750 steps) from Monday to Friday. We invite you all to come on board and join the fun. All you need to do is open the link on your phone and join the squad. 

We have also secured some great prizes including a six-month PEC membership in collaboration with Queens Sport and a two-week meal supply kindly donated by Primal Fox Nutrition. In addition to the first 3 people to reach the virtual summit, we have also got a prize for the best picture from all your walks, so get snapping! 

Any questions regarding the app, well-being material or if you fancy a chat, just get in touch a.smart@qub.ac.uk or d.m.oneill@qub.ac.uk

All in this together….staying connected

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In this post Pauline Cardwell, Year 2 Lead and Lecturer in Children’s and Young Peoples Nursing, reflects on the difference connection can make.

It is hard to believe we are almost 10 months into this pandemic event, which has caused each and every one of us to review and reflect on every aspect of our lives, personally, professionally and as a community.  This evolving and uncertain period of time has challenged us as individuals and has also afforded us some real opportunities to create and deliver on new ways of working, providing engaging and inspiring learning activities, whilst being mindful of the human cost individually, whilst ultimately remembering we are all trying to navigate this difficult and unpredictable time.

Essence of nursing

Nursing has always prided itself on being a caring and compassionate career, where at the heart of its DNA is the privilege to care for individuals and communities at vulnerable, challenging, difficult and joyous times in their lives. This act of caring is the essence of ‘what we do’, to hold the hand of someone who is frightened or scared of the journey ahead or celebrating the end of a successful treatment plan, a newfound independence, a recovery made, or a new life delivered. Whilst this may be the essence of nursing it can sometimes require a heavy payment. We have all seen so many images of those heroes after a demanding, draining and sometimes devastating shift and still we come back and do it all again.

Every one of us has paid the cost in a plethora of ways. The worry of supporting each other, hoping we can deliver a curriculum fit for the future and as educationalists caring for our students. I experienced this acutely one day in November where I unexpectedly was contacted by a student in distress, they were overwhelmed at the acuity and challenging clinical environment they were currently working in. The student was upset, tearful and visibly distressed, the wise ward manager had asked them to take a break and suggested taking a walk outside to assist in reducing the stress they were feeling.

The power of connection

It was a bright, clear day and I reassured the student I was here to listen and asked them to explain what they were feeling. I felt the need to assist the student to achieve some grounding and perspective of what they were feeling, and I asked them to describe what they could see and if there was any greenery around. The student allowed me to view their surroundings and I noted a tree nearby and asked them to do something for me, I asked the student to go to the tree and rest their palm against the trunk of the tree. Initially, they were reluctant to carry out the activity, I reassured them I was with them and encouraged them to go ahead and trust me. We then both closed our eyes and I asked them to focus on their breathing. I then began to talk quietly and calmly to the student asking them to consider how the tree had lost its leaves and looked ‘dead’ essentially but also consider that come spring the tree would bud again and burst into life once more. I noted their breathing patterned had calmed and their speech was not as rushed as previously. Eventually we concluded the conversation when the student felt able to return to their shift.

Making a difference to others

Reflecting on this event, I feel grateful I had the opportunity and privilege to support this student at such a personally vulnerable time for them. On further consideration I truly appreciate that this is truly a momentous time for our professions, we are courageous, we are caring, we are compassionate but ultimately, we are human. So, my wish for us all as we move forward and hopefully to a more ‘normal’ way of life is to; be kind to ourselves and others, be keen to learn, develop and progress and to be confident we are capable of delivering, growing and most of all making a difference for others.

#proudofourstudents #IloveNursing

‘Practicing what we preach’: Teaching mental health and wellbeing in a pandemic.

In this post Karen Galway, Pauline McCarthy, Debbie Duncan and Aine Aventin (with contributions from the module teaching team and Sept ’19 nursing cohort) practice what they preach and reflect on an initiative to protect their own and their students mental health.

Picture the scene: It’s September 2020 and a second wave of Covid-19 pandemic has started impacting our health Service in Northern Ireland. Semester one of 2020/21 in the School of Nursing and Midwifery starts in a few short weeks. Our students face continued uncertainty about the future of their degree programme. Teaching is now online with students on campus for essential skills only. Whether the programme will follow the usual pattern of six weeks on campus and six weeks of placement is anyone’s guess.

Our brand new undergraduate nursing curriculum, developed pre-covid, rubber stamped by the Nursing and Midwifery Council, now needs fleshed out under totally new and by now, clichéd unprecedented circumstances. Learning curves are steep, tensions are high and energy is [at times] low.

One teaching team is focused on a new module; Working inter-professionally to improve mental health and wellbeing. This module isn’t presenting a new topic per se, but it presents a consolidated approach to teaching mental health to nursing students, during the toughest of times. With two Lecturers co-ordinating plus eight teaching staff, the module team must now place a new level of focus on mental health and wellbeing for all nursing specialties; adult, children’s, learning disability and mental health.

Week one focuses on models of mental health and wellbeing, stigma and discrimination along with self-care. We introduce mindfulness, self-care principles for nurses and an overview of how covid-19 may be impacting on nurses’ mental health. Week two considers social epidemiology and inequalities to address risk and protective factors for mental health and wellbeing. We also address communication skills and the basics of a mental state examination. Week three addresses issues related to self-harm and suicidal ideation and prevention. It’s challenging content, for lecturers and students alike, in challenging times, taught under challenging conditions.

We worry about how the students and the staff will manage the online environment. We worry about whether we will recognise who is struggling or indeed over identifying with the content. Beyond our self-care content, we also provide links to support, across the university and in the community and we consistently remind our students to reach out and to practice self-care.

Despite our efforts, there seems no easy way to maintain our connections to the students while we all get used to these new technologies and grapple with a new societal normal. Meanwhile three other modules are in full swing for these year two students. We are still groping about awkwardly with a lot of the processes such as developing a meaningful attendance monitoring policy. The timetable can feel brutal, with students and teaching staff online, in classes for up to 6 hours straight. Still ahead in our module specification is week four, focused on physical and mental health interactions, week five addressing trauma informed practice and adverse childhood experiences, with the final week explaining the symptoms of common mental health problems and an understanding of the stepped care model and other useful supportive responses.

Something about this feels very wrong. We are teaching the students about mental health and wellbeing in the middle of a pandemic, while expecting staff and students to perform as normal. In reality, nothing inside or outside of university life is feeling anything like normal.

Day one and week one involve shell shock and eye strain. The materials are well received but the challenge of online delivery intensifies. After two weeks of teaching at ‘business as usual’ pace, we stop to consider this rock of necessary progress against the hard place of exhaustion, frustration, worry and potential disengagement. We brainstorm on how to give ourselves and the students some space to breathe. Can we alter our timetabling? Can we switch live content to recorded content? Would that help? Can we provide adequate breaks and importantly can we identify students who are struggling?

A few actions were tabled and adjustments made to the format for week three. We decide to cut back screen time. In our mental wellbeing module we replace a live online tutorial with a self-care activity.

Students were notified that the two-hour session would now involve a discussion board, instead of a live session. We sent a simple request that the students go and “practice what we’ve been preaching”. The instructions were to take the time to do something to protect and maintain their mental wellbeing, to post a photo or video and comment about the activity on a discussion board. That amounted to a small concession to the Covid-teaching challenge, but it had a big impact.

Within 10 days the discussion generated 546 posts, 250+ photos of stunning autumn scenes, a variety of video clips, poetry, art, music, pet appreciation, baking and a huge amount of shared joy!

A selection of photos and comments from the discussion board

We can confirm that the Sept 19 students are a cohort of dog-lovers, walkers, runners, sports stars, artists, empathetic and caring parents, siblings, children, flat mates and all round philosophers. Contributions were authentic, honest and entertaining personal accounts of how each individual took care of their mental wellbeing, in two hours of me- time, designated for self-care. Reading and commenting on the joy of free time, downtime, the positivity and the creativity was more than a pleasure. It was addictive! Perhaps the discussion board felt like a surrogate for the missing sense of community that the pandemic has taken away. Perhaps it should not be surprising that such a simple idea was embraced in such complicated times.

Acknowledging student contributions
Sept ‘19 undegraduate nursing students: Leon Daly, Shannon Campbell, Cliodhna McIntryre, Marianna Donahue, Deirdre Boyle, Siobhan Duffy, Emma Shields, Chloe Truesdale, Edelle Brown, Caroline Devlin, Roisin McCann, Holly Brown, Megan Elloitt, Roisin Byrne, Orlagh Carson, Santina Campbell, Heather Gould, Caitlin Duffy, Grace Espie. Thanks for allowing us to share your discussion posts and photos.

It would be great to hear how you have managed your own mental health or that of your students since the beginning of the academic year. Comment below- or send us a photo!

Empathy + Communication = Connection

To mark International Mens Day, School of Nursing and Midwifery Head of School, Prof. Donna Fitzsimons reflects on the connection made between her brother when he was ill and a male nurse, and argues that the profession and our patients would benefit from more men in nursing.

My name is Donna Fitzsimons and I’d like to share a short story with you that as a Head of a busy School of Nursing & Midwifery where less than 10% of our undergraduate students are male, I tend to reflect on quite a lot. 

It starts some 20 years ago now, when my brother Joe was 32 and he was diagnosed with a Ewing’s Sarcoma in his spine. This was a big shock to Joe who was an average sort of guy – a builder, married with three kids and a strong circle of family and friends. He was very much a man’s man, if you know what I mean, liked a pint with his mates and a game of golf at the weekend.

From the word ‘Go’, the odds were 50/50 at best, and the gruelling 3 weekly chemo would last almost a year and require a minimum of 3 days hospitalisation for each one. A self-employed guy, Joe had to give up work, he lost his hair and he was pretty sick and sore. Despite that he loved a joke, was competitive on the Mirror Crossword and when I called up to see him at lunchtimes he was usually found begging the nurses to speed the drip and let him out of there. He hated living in pyjamas, wasting daylight and going bald. 

More importantly he hated sympathy or being treated as a sick person and that’s where Mark came in. He was a Staff Nurse on the chemo unit, always ready to have chat about his golf game, or seek Joe’s advice on how to fix a leaking flat or get new double glazing. Mark saw beyond the pallid guy pushing a drip around and helped Joe connect with his usual identity. They developed a therapeutic connection that really made that treatment journey less toxic to my brother; and all the more so when the cancer returned – when treatment had to start all over again, and when Joe acknowledged his days were numbered. 

In those days Mark came into his own and helped Joe get his head round some of the most challenging of physical and mental issues – usually with a joke or a pat on the back and a palpable ‘we’re in this together’, shoulder to shoulder approach.  Mark was a fabulous nurse, he had great empathy and communication skills, exemplifying that these are not gender specific qualities and that they are at the very heart of our professional practice as nurses and midwives.

I often reflect whether this was a gender issue? Were all the female nurses who cared for Joe in such an exemplary way not able to provide the kind of support that he got from Mark, just because they weren’t a man? I don’t really believe that. But what I do believe is that because roughly 50% of patients are men, we need to rectify the gender balance in our profession. 

Diversity and inclusion are a top priority for Nursing & Midwifery. I think our professions provide wonderful opportunities for career development and job satisfaction, and despite all of the inherent challenges that we face, we are also privileged to have rewarding and enriching careers. Currently we also have job security and reasonable pensions to enable us to provide for our families. So let’s stop worrying about the optics and do what we know in our hearts is the right thing to do – shout it from the rooftops – patients need men in Nursing & Midwifery and so do the professions.

Prof. Donna Fitzsimons

In this blog, Alannah Curran, a PhD student with dyslexia, shares her experience of becoming connected using her Dragon.

On reading this title you may be thinking of Game of Thrones with Daenerys Targaryen and her dragons conquering Westeros or the Viking Hiccup training his dragon Toothless for the greater purpose of changing perceptions of dragons. Well, my dragon is not a real one as such, it is a software called Dragon Professional Individuals by Nuance which is a dictation technology that essentially types what you are speaking. But, like Daenerys and Hiccup I am using my own dragon in conquering my own PhD journey with dyslexia and throughout that journey changing perceptions of dyslexia within academia.

So, let me tell you how I came to be where I am today. I am Alannah Curran, a second year PhD student within the School of Nursing and Midwifery here at Queen’s University Belfast and, I am dyslexic! A lot of people ask me when did you first realise you had dyslexia? The answer to this question is, from first entering the education system however, I was not officially diagnosed with dyslexia until I entered Queen’s University as an undergraduate nursing student. Growing up with dyslexia through  the education system was challenging but I always managed to see the funny side, like when I read out ‘orange-ootan’ instead of orangutan and this humour allowed me to develop a coping strategy, giving me  the determination to achieve the grades I needed to enter the undergraduate nursing program within Queen’s University, after two failed interviews may I add. 

When the revolution of social media began in my teenage years, I also had many experiences of miss spelling words on my social media posts. You can imagine how this felt as a teenage girl. A lot of people found it humorous, including myself, however I still struggle writing posts on social media which to this day impacts on my engagement with connected learning in using chat functions on Microsoft teams, group forums, posting on twitter and even writing emails. 

The turning point for me was in disclosing my disability to Queens and being told through my assessment I had dyslexia, so I finally understand why my brain works the way it does and why I find specific tasks such as reading, spelling, recalling information and talking without stumbling on words a challenge.  Student Guidance Centre then put an individual reasonable adjustment plan in place and collaborated with the School of Nursing and Midwifery, so I received the support I needed such as: extra time in examinations, a dyslexic support tutor, adequate consideration given to oral presentations, and access to dyslexic specific software mainly read and write gold, mind view maps and recording devices for lectures. This support allowed me to develop and adapt to academia to reach my potential, graduating as an adult nurse with a first-class honours degree and then completing my masters in advance professional practice with distinction. This brought me to my current status as PhD student where I have learned I read better on blue paper. Yes such a strange concept, but I discovered dyslexics experience a glare of white paper which negatively effects reading, and explained why when reading I would squint at the page regardless of having 20/20 vision. However, the downside of this was (Pre COVID-19), I would mistakenly leave my blue paper in the printer, meaning my PhD colleagues would come along to print important protocol documents on my bright blue paper!. Everyone knew exactly who the culprit was but I like to think I brought a bit of colour to their day. 

But where is my dragon, I can hear you asking! No, I did not emerge from the ashes of a flaming fire holding my dragon like Deanerys. I was introduced to my Dragon in a more conventional, but still exciting, way through the Student Guidance Centre.  

How do you train a Dragon? 

One of the most challenging but entertaining aspects of training was asking the Dragon to get to grips with the Northern Ireland accent. If you are an international faculty member or student or even from another province in the UK or Ireland am sure you will understand the challenges my Dragon faced. My dragon would interpret the word ‘now’ as ‘neagh’ and ‘how’ and ‘high’. Being in its infancy, like a toddler when picking up new words, my Dragon had a tendency to repeat, let’s say, comments of frustration which I had to ensure were not included in documents sent to my supervision team. However, after only a few days of training my Dragon the software adapted to my accent allowing me to talk freely without correction. 

How do I use my Dragon to remain connected in my learning? 

I am using it right now; I have written this entire blog using my Dragon Software. By embracing this technology, I have developed digital capabilities giving me the skills and therefore the confidence to overcome challenges I face day-to-day with my dyslexia in PhD journey. Specifically, I now have the skills to use Dragon software to facilitate me in adequately engaging with connected learning such as, chat functions on Microsoft teams and posting on twitter as I am confident that the dragon software will provide the correct spelling allowing me to overcome my previous experience. I have also embraced my Dragon software to write my systematic literature review and methodology chapter for my PhD.  I am now adapting my systematic literature review for publication. This is not without its challenges, but by collaborating with my supervision team, Student Guidance Centre and my dyslexic support tutor in continuously assessing and reassessing my abilities. 

What are the benefits and changing perceptions?

So what does all this mean? I would like you to take a moment to think about dyslexia as a faculty member, student nurse or indeed your dyslexia yourself… What do you think about dyslexia? Mixing up b’s and d’s?; difficulties reading and spelling?; if indeed you are a dyslexic yourself a lot of people report the feeling of being stupid. How, I want to ask you did you think of many positive attributes of dyslexia during this time? Maybe you did, but most likely you didn’t. Yes, mixing of b’s and d’s and challenges with reading spelling is a part of being a dyslexic but dyslexia is much for than the misconceptions society has of it. We need to move away from thinking of dyslexia negatively and think about the significant cognitive advantages that dyslexics have and identifying those. Dyslexia is a different way of thinking not a disadvantage and empowered dyslexics do amazing things.

People with dyslexia are: dynamic achievers, innovators, creator’s problem solvers, and possess so many skills and attributes to contribute in society, the workplace and indeed Universities. Don’t believe me… well let me tell you a few facts. 40% of self-made millionaires and billionaires are, yes you guessed it, dyslexic. Many of you may be reading this blog on an iphone or an apple Mac, Steve jobs was dyslexic. How many of you drive a car? Henry Ford was said to be dyslexic. There are so many others, Orlando Bloom, Keira Knightley we all know Richard Branson. But my favourite statistic is you know all them insanely intelligent people at NASA, one in two scientists at NASA are dyslexic. 

The cognitive advantages of dyslexia are being viewed as those needed to thrive within the current technological revolution, which COVID-19 has now escalated.  As I have shown, my academic journey with dyslexia has really been about unlocking my potentials as a student. One of the keys to unlocking my potential has been learning to embrace digital technologies like my Dragon and developing my own digital capabilities which has allowed me to gain confidence to overcome challenges. However, we need to think not only about developing digital capability for students with dyslexia but for all student nurses who are the future workforce of the ever-digitalising healthcare system. And indeed, providing opportunities for faculty to be equipped with the digital capabilities provide nursing students with these skills. How do we do this? How do you think this could be done as a student nurse or a member of staff? This thinking has led to my current PhD study: Exploring digital capability within nursing curricula in Northern Ireland; the perceptions of pre-registration nursing students and nurse educators.  I don’t have all the answers and would love to hear what you think! 

If you wish to know more about my PhD study or to register your interest in participating please see links below OR alternatively please email me at acurran21@qub.ac.uk 

Nurse educator link to register interest  

www.NEinterest.com 

Pre-registration Student Nurse link to register interest 

www.PreregNSinterest.com 

Fo more information on the Student Guidance Centre, please visit https://www.qub.ac.uk/directorates/sgc/disability/studentinformation/